Cancer website images Feb 2016 12 v2

 

Patient Involvement

The Greater Manchester, Lancashire and South Cumbria Strategic Clinical Network delivered a National Cancer Patient Conference in 2015 from Manchester Central. The idea for the conference came from the Lancashire and South Cumbria Cancer Partnership Group who felt that patient engagement with Cancer Patients had waned since the changes to the Health Service seen in the 2012 Health and Social Care Act reforms.  The conference itself was a real success. The Cancer network team in Greater Manchester, Lancashire and South Cumbria see the 2015 conference as a launchpad for a more engaged patient voice.

2015 Conference

On 13th March 2015, the Greater Manchester, Lancs & South Cumbria Strategic Clinical Network (GMLSCSCN), hosted a National Cancer Patient Conference in Central Manchester.

 Stuart blurred

Stuart Gibson, Chair of the Lancashire & South Cumbria Cancer Partnership Group, felt it was important to re-instate a mechanism for patients to have their say at a national level. The huge changes that had taken place in the NHS over the last few years had impacted on patient involvement and engagement and the purpose of the conference was to provide a forum to facilitate re-engaging the NHS with patients but also providing patients and carers with additional information and opportunities on how they can become involved across the NHS and wider healthcare organisations.

 Sean Duffy blurred

Professor Sean Duffy, National Clinical Director for Cancer, was Keynote Speaker and Chaired the day, alongside Stuart Gibson.  Almost 300 delegates attended the conference, many of whom were patients and carers, with some delegates travelling from as far away as the North East, London, Suffolk and Wales. There was a real buzz and energy to the day and delegates visited a series of workshops of their choice where they could hear about how organisations had engaged with patients, whilst also providing delegates with an opportunity to suggest other ways of engaging with service users.

Delegates also had access to a 16 stall market place which brought together a wide ranging variety of cancer charities, helping organisations and statutory bodies, each of whom provided displays, information, advice and help for delegates.

The conference concluded with an Expert Panel where patients were given the opportunity to put forward questions to ask on the day.  We hope that the conference will provide a legacy going forward for patients to continue to have a national voice and be given the opportunity to be involved in shaping cancer services.

A Post Conference Report has been produced which captures details of the day and the evaluations from workshop hosts and delegates.

Presentations from the conference can be found belowMarket Blurred

Professor Sean Duffy Opening Address

The Peer Review Process and the Patient Voice : Ruth Bridgeman

Healthwatch – How to get involved : Mark Rasburn

Cancer – Coping with Psychological Factors : Kevin Dennison

Teenagers and Young Adults: 10 years of involving young people in improving their cancer services : David Wright and Lorraine Wright

Patient Insight and Patient Experience : Dan Wellings and Catherine Thompson

How NHS Improving Quality is using patient and carer experience within quality improvement : Lisa Edwards

Prostate Cancer UK Effective Patient Engagement : Ann Innes

NICE and patient and public involvement : Laura Norburn

Cancer Research UK: an interactive introduction to local cancer data : Tom Lee and Rosie Hinchcliffe

The Breakthrough Breast Cancer Service Pledge : Catherine Wood

 

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