End of Life Care tools provide practical guidance and support to help health and social care staff implement the End of Life Care Strategy.
There are tools available to guide on all aspects of end of life care from Advance Care Planning through to caring for the dying patient. There are also tools developed which provide support and direction over the entire end of life pathway, providing a framework to facilitate the delivery of high quality end of life care.
In addition to these tools the Cumbria and Lancashire End of Life Care Network have developed the Six Steps to Success Programme in collaboration with the Greater Manchester and Cheshire Cancer Network and the Merseyside and Cheshire Cancer Network. This programme incorporates the key End of Life Care tools in a package designed to facilitate organisational change and high quality end of life care in care homes.
Holistic Common Assessment
Effective holistic assessment processes are key to meeting the complex, wide-ranging and changing needs of people approaching the end of life.
Meeting the complex, wide-ranging and changing needs of people approaching the end of life requires:
effective care co-ordination across boundaries
a sound understanding of the individual's needs, preferences and priorities for care.
Effective holistic assessment processes are key to this.
The National End of Life Care Programme have produced the Holistic common assessment of supportive and palliative care needs for adults requiring end of life care.
This document provides guidance for holistic common assessment of the supportive and palliative care needs of adults requiring end of life care. It highlights five core areas or domains for holistic common assessment and sets out the content within each of these, so that teams can benchmark their local processes and tools. It sets out the main features of the process – including the who, when, where and how – of holistic common assessment.
It also highlights a range of existing assessment and planning tools, guidance and relevant policy, signposting to other resources where appropriate.
Gold Standards Framework (GSF)
The Gold Standards Framework was initially developed for use in primary care settings so that people approaching the end of life can be identified, their care needs assessed and a plan of care with relevant agencies put into place.
Routes to Success
The Routes to Success are a series of documents and guides developed by the National End of Life Care Programme which aim to provide the workforce with simple guides to support the implementation of the end of life pathway.
Routes to Success guides have been produced to support staff in many sectors in delivering end of life care and currently the series contains guides for domiciliary care, hostels and for homeless people, care homes, acutes hospitals and for people with learning disabilities.
All these guides, supporting sheets and more information around the series can be found on the National End of Life Care Programme website.
Preferred Priorities for Care
This patient held document was designed to facilitate patient choice in relation to end of life issues.
Through good communication and by documenting patient and carers choices, they become empowered through the sharing of this information with all professionals involved in their care.
The PPC document provides the opportunity to discuss difficult issues that may not otherwise be addressed to the detriment of patient care. The explicit recording of patients/carers wishes can form the basis of care planning in multi-disciplinary teams and other services, minimising inappropriate admissions and interventions.
The PPC also records services available, services being accessed and reasons for changes in the care trajectory. PPC is a process, which facilitates service review, further empowering professionals to negotiate service requirements on the behalf of patients, becoming an integral part of service commissioning and design.
Download the Preferred Priorities for Care document.