Over 500,000 people die each year in England of whom two thirds will be over 75. Death occurs in a wide variety of settings from hospitals, care homes and hospices to the home. Many people will be transferred many times between these different settings in their final years, months, days and hours. So being responsive to their individual needs and preferences is an enormous challenge.
In this section of the website you will find information on:
- End of Life Care Tools
- Holistic Common Assessment
- Gold Standards Framework
- Routes to Success
- Preferred Priorities for Care
- Links to Other Websites
End of Life Care Tools
End of Life Care tools provide practical guidance and support to help health and social care staff implement the End of Life Care Strategy.
There are tools available to guide on all aspects of End Of Life Care from Advance Care Planning through to caring for the dying patient. There are also tools developed which provide support and direction over the entire end of life pathway, providing a framework to facilitate the delivery of high quality End Of Life Care.
In addition to these tools the Cumbria and Lancashire End of Life Care have developed the Six Steps to Success Programme in collaboration with the Greater Manchester and Cheshire Cancer Network and the Merseyside and Cheshire Cancer Network. This programme incorporates the key End of Life Care tools in a package designed to facilitate organisational
Holistic Common Assessment
Effective holistic assessment processes are key to meeting the complex, wide-ranging and changing needs of people approaching the End Of Life.
Meeting the complex, wide-ranging and changing needs of people approaching the End Of Life requires:
- effective care co-ordination across boundaries
- strong communication
- a sound understanding of the individual's needs, preferences and priorities for care
Effective holistic assessment processes are key to this.
The National End of Life Care Programme have produced the Holistic common assessment of supportive and palliative care needs for adults requiring end of life care.
This document provides guidance for holistic common assessment of the supportive and palliative care needs of adults requiring End Of Life Care. It highlights five core areas or domains for holistic common assessment and sets out the content within each of these, so that teams can benchmark their local processes and tools. It sets out the main features of the process of holistic common assessment, including
- the who
- the when
- the where
- the how
It also highlights a range of existing assessment and planning tools, guidance and relevant policy, signposting to other resources where appropriate.
Gold Standards Framework
The Gold Standards Framework is a systematic, evidence based approach to optimising care for all patients approaching the End Of Life.
The Gold Standards Framework was initially developed for use in primary care settings so that people approaching the end of life can be identified, their care needs assessed and a plan of care with relevant agencies put into place.
To visit The Gold Standards Framework website Click Here.
The Route to Success
The Routes to Success are a series of documents and guides developed by the National End of Life Care Programme which aim to provide the workforce with simple guides to support the implementation of the end of life pathway.
Routes to Success guides have been produced to support staff in many sectors in delivering end of life care and currently the series contains guides on the following
- Lesbian, Gay, Bisexual And Transgender People
- Prison And For Prisoners
- People With Learning Disabilities
- Social Work
- Environments For Care At End Of Life
- Nursing To End Of Life
- For Occupational Therapy
- Domiciliary Care
- Acute Hospitals
- Care Home
All these guides, supporting sheets and more information around the series can be found on the NHS IQ Website Click Here
Preferred Priorities for Care
This patient held document was designed to facilitate patient choice in relation to end of life issues. The Preferred Priorities for Care (also known as PPC) can help to prepare for the
future. It gives the opportunity to think about, talk about and write down
preferences and priorities for care at the end of life.
Through good communication and by documenting patient and carers choices, they become empowered through the sharing of this information with all professionals involved in their care.
The PPC document provides the opportunity to discuss difficult issues that may not otherwise be addressed to the detriment of patient care. The explicit recording of patients/carers wishes can form the basis of care planning in multi-disciplinary teams and other services, minimising inappropriate admissions and interventions.
The PPC also records services available, services being accessed and reasons for changes in the care trajectory. PPC is a process, which facilitates service review, further empowering professionals to negotiate service requirements on the behalf of patients, becoming an integral part of service commissioning and design.
To download the Preferred Priorities for Care document please Click Here
Enhanced Supportive Care
Enhanced Supportive Care is a new initiative that involved the treatment of problems that having cancer or cancer treatment causes - in particular managing pain and symptom control. The idea behind the initiative is all about providng better access to expertise. To find out more about supportive cancer care, have a look at this presentation.