The SCN has funded a number of Patient, Carer and Public (PCP) Advisory Group projects. Below is a selection of excellent projects carried out by our members in helping us deliver our objectives.   

Faith in Mental Health - Partnership Project

  

The SCN worked with the BME Health and Well Being on delivering the Mental Health Faith Champion Project. The project focused on bringing together people from faith communities to discuss how to support people with mental health issues and explore the possibility of becoming mental health faith champions. 

Mental health service users, carers and professionals including guest speakers from faith groups attended and took part in the workshops in March 2016.  A full report outlining the workshop with recommendations is currently being produced.

The see a summary of the output from the workshops follow the link below:

Faith in Mental Health - Partnership Project

Breaking the Barriers - BME Health Inequalities Conference

  

The purpose of the BME Health inequalities conference was to look at how we can reduce health inequalities faced by the BME communities in Rochdale. Our aims were to look at how we could improve health and wellbeing outcomes for these particular communities and ensure that the Health and Social Care policies are developed in the line with the views of local communities.  As well as providing an opportunity for BME community groups to identify and raise awareness of unmet health needs within their communities.  Thereby developing a BME Health Forum so that it will provide a way for health professionals and commissioners to listen to the health needs of marginalised patients and make improvements to health services. This forum would create a platform for dialogue with the local commissioners in order to develop and deliver local health services for their communities by promoting and improving access to services for BME and migrant communities.  

To read more about the conference follow the link below:

Breaking the Barriers Conference Report

Arts Therapy and Dementia Awareness Session

  

The Multicultural Arts and Media Centre (MAMC) is a community arts and media development organisation formed in 1987 and is a registered charity.  MAMC organised two Arts Therapy Dementia Awareness Sessions at MAMC with support from Greater Manchester, Lancashire and South Cumbria Clinical Network and Senate, Heywood, Middleton and Rochdale Clinical Commissioning Group’s Social Investment Fund, Alzheimer’s Society and Link4Life. The target participants were patients, carers and members of the community from BME including women who are underrepresented within this area of work.  The aim of the project was to provide Dementia Awareness with opportunities to become Dementia Champions and to increase awareness and knowledge of Dementia within vulnerable and excluded communities and groups.  

To read more about the Best Practice follow the links below:

Arts Therapy and Dementia Awareness Session

Arts for Dementia Therapy Network NW Launch Event Short - You Tube

  

Mental Health and Faith

  

Rochdale Council of Mosques (RCM) is an umbrella body representing all mosques and teaching centres in Rochdale.  Its vision is to develop successful, confident and united Muslims, who pursue their aspirations with respect and dignity in order to make valuable contributions to the economic, spiritual and civic life of Rochdale.

Mental Health has been a major issue concerning all communities but on relative terms the scale of need is described as greater in BME communities and due to the diverse nature of these communities it requires complex delivery models of service provision which are sensitive to individual needs of these diverse communities.   In 2014 like in other communities mental health remains a taboo subject and RCM recognised that a Faith Based Approach was required to promote discussions and consequently raise awareness of this serious issue.   

To read more about the Best Practice follow the link below:

Mental Health and Faith Report

Patient Ambassador programme to Aid Self-Management of a Long Term Condition

  

Our main aim was to use the funds to provide professional and personal development skills to ensure the effectiveness of the mentor/ buddy programme. In addition, this would lead to a higher standard of delivery.  Furthermore, we also offered spaces to any young adult wishing to learn more about self-management.  With this innovative approach, we also hoped to improve the experience and personal reward of being a mentor/ buddy and long term health outcomes and self-management skills of all who attended.

The young adults are active stakeholders in the Renal Young Adult/ Transition clinic and are invited to attend service delivery meetings on a monthly basis. Attendance at the course has enabled closer collaboration with patients and empowering them with confidence that they can influence the system. This has wider benefits to carers and partners too.

Protected Categories Views on Health and Social Care Services

  

The main lessons we learnt was that there is an issue with access to substance misuse services within the Borough for the BME community, and there was no LGBT support group in the borough.

The project enabled local community groups to share their views on Health and Social Care services through trusted and established networks.  It also enabled groups to share their personal issues with local services to share with Healthwatch to help improve services for everyone.  It has also helped Lancashire LGBT establish themselves in the Borough and promote their service further. 

Cancer Partnership Group Away Day

  

The Cancer Partnership Group Away Day took place on 7 May 2014.  The aim of the day was to review purpose and terms of reference and to establish an action plan.  Ruth Bridgeman, National Peer Review Coordinator attended the day to provide the group with more clarity around the Peer Review process.  Other presentations were given by Dave Ardron from Yorkshire and Humber area who gave the group an overview of their activities, whilst John Herring, Programme Lead from GMLSC gave more information on the SCN priorities.The lessons learned from the day were the power of personal experience to shape cancer treatment and pathways; the value of real face to face engagement between patients and policy makers, health workers and clinicians beats tick box exercises; the power of the phrase: No Decision About ME Without ME.

Transplant Advice for Patients Approaching the Need for Dialysis

                

The benefit to patients of receiving a “pre-emptive” transplant are that they do not need to undergo dialysis which is a daily or every other day intrusion on their lives so they can continue working or living as they normally would. The benefit to carers is that their cared for patient will need little care. The benefit to the public is that the cost of transplanting a patient, providing them with the medication to keep their organ stable and providing clinical follow up is less than for dialysis, either home or hospital based.

 

Although the Lancashire Teaching Hospitals Transplant Team were able to design a booklet ready for production, they did not have the Finance to have the document printed and made available to patients.  They approached our KPA to ask if we could help, we decided that we could and also had help from a separate offshoot, (Morecambe Bay Renal Patients Association and the Strategic Clinical Network). The booklet has been delivered to the Transplant team and both Transplant Doctors and Sisters hand them out to patients in their clinics with both staff and patients finding them to be very helpful.